The issue now is that I have no refills on the levothyroxine and have not had any blood work in about 2 years. The average thyroid patient gains about 15 to 20 pounds after RAI/thyroidectomy and this weight is more pronounced if the thyroid patient was overweight prior to the procedure. I am on NP with an additional Synthroid to balance me out. Because of this, people who undergo RAI (meaning those who destroy their thyroid gland) need some type of thyroid hormone replacement. To protect family pets, do not sleep with them for up to 21 days. Some people also feel flushed. . There is a paucity of literature on the minimum interval between contrast administration and RAI therapy. My health is anything but wonderful. The next person to tell me how easy this cancer is, Im going to pull their toenails out threw their nostrils then tie them in a knot out their but hole. Your Doctor will be able to help determine how much of your gland was destroyed. I have been on bioidentical hormone replacement therapy for 3 years now and feel somewhat better. I cant find anything suggesting these are expected symptoms after RAI. But over the past month I see my weight dropping a half to a pound daily. I have been asked to transport a friend who is having Radioactive Iodine treatment both the day of and a couple days later for her followup scan. Nevertheless, hair loss can be associated with changing levels of thyroid hormone, and may be experienced by some patients with hypo or hyperthyroidism. I had never been to endocrinology prior and had no idea about thyroid function. When the gadolinium is injected, it is normal to feel coolness at the site of injection, usually the arm for a minute or two. Yup, the pain and numbness Dx CTS, that was put on the back burner for a while, as it wasnt all that troublesome at the moment. Because your thyroid has been ablated, you will most likely need thyroid medication for life. And that training tells me I wont be ready to go back to work that afternoon. Sign up to receive 20% off your first order. Swelling and tenderness of the salivary glands. My throat is killing me and outside of my neck is swollen. Im at the point now where I told all the doctors for my medical team, and team being the operative word here, that Im not going to offer anymore feelings of what Im going threw, or feeling, Im not going to ask anything, nothing, you all have my lab reports and other diagnostics, y all can figure it out for yourselves! It may sound counterintuitive, but youll understand why you might want to after your procedure. Be particularly careful around infants and children, who are especially at risk for exposure complications. With a regime as this, its no wonder for depression, no sleep! I had RAI treatment for severe Graves disease in 1993. In some radiation emergencies, usually nuclear power plant accidents, radioactive iodine may be released into the environment and enter the body through breathing or eating it. The other 20% may require additional testing and the use of other thyroid medications which contain T3 thyroid hormone. Its the working hard for absolutely nothing that I dont want to do! Then, also there is the womens health portion of all this, and so I had my annual, and a polyp was found on my cervix, it was a rather large one, and thankfully no cancer cells on that, my PAP Im waiting for results. I used to be bubbly, and interactive with people. . It turns out, which should come as no surprise, that medications are not a 100% complete substitute for the activity that your thyroid gland does on a day-to-day basis. As I am not a doctor, my specific question is why does the level of levothyroxine I require change if my thyroid was destroyed? Since the science is inexact there are two ways of approaching the treatment. Iodine and Hair Loss. It really depends on whether or not your entire thyroid gland was destroyed. Please help me what to do with this. I had RAI treatment year 2010, and now I am taking levothyroxine for my hormonal replacement since I am considered as hypothyroid patient. Here are some ways to minimize radiation risks to other people (and pets) after you have had RAI treatment: Your healthcare provider will give you specific guidelines regarding how long various restrictions should remain in place in order to protect those around you. It is a measurement of thyroid function, but does not involve imaging. This comes in the form of a simple hormone medication that you can take each and every day to help normalize your thyroid hormone levels. Iodine is a mineral that your thyroid uses to create thyroid hormone. my RAI, i have rough horsey voice also for a month . Abnormal menstrual cycles. I moved doctors in 2016 and my new GP immediately put my dosage down to 125 despite my protestations that I felt absolutely fine on 150. Thinning hair. Yes, absolutely. If I take a snack is determined on what my glucose reading was. Another problem Ive faced is I ask one doctor about this or that feeling Im having and I get told that doctor doesnt deal with that have to tell the other doctor, I tell the other doctor and they tell me I have to tell another doctor because they dont deal with that issue. Thank you! The majority of radioactive iodine is taken up by your remaining thyroid cells, since the thyroid normally uses iodine to make thyroid hormone. The best course of action is to contact the doctor that was responsible for your procedure and let them know about your symptoms. This is an extension of what weve already discussed but its worth spending some time on this specific point. Please see these articles which explain why weight loss is so difficult after thyroid removal or RAI: https://www.restartmed.com/levothyroxine-thyroidectomy-patients/ Pretty much any of the diets listed there will be at least somewhat beneficial. My Dr. stated that my MTHFH enzyme is blocked indicating a genitic issue. I am concerned. My biggest fear is loosing my hair, my identity as a woman. The relationship between your thyroid to your hair growth aside, iodine . After years of somewhat of a normal feeling with the Naturethroid I received a letter saying they were taking it off the market. I had this feeling when I went into surgery last Tuesday, but shrugged it off as just my fears in over time. Can Hashimotos Be Reversed? I had RAI about 39 years ago and every year Im tested for my TSH level which always seems to be in the normal range. It has to do with how important your thyroid is in regulating your metabolism and your weight. Researchers estimated a 12% increased risk for death from breast cancer and a 5% increased risk for death from . Im so confused my gp has no explanation my hair is falling out I dont eat anything only 3oranges a day and pure fruit juice now I have moderate atrophy on my pancreas and I cant get into a specialist for 1-2 years ., can h explain whats really going on, Please see this article for more information on managing hair loss with thyroid problems: https://www.restartmed.com/thyroid-hair-loss/. You probably will not feel sick during this time, but these precautions are in place to prevent you from accidentally harming another person! I eat three meals with three snack times. I have Graves disease and recently have a hyperthyroid flare up after being in remission, I went back on my meds but was recently taken off to see if I can do radiation. This keeps the radioactivity from destroying other cells in your body and only allows for the destruction of your thyroid gland. Can You Eat Soy If You Have a Thyroid Condition? Because the hair is sealed off during the BK treatment the color might not be able to penetrate into the cuticle. I am now 54 years old. Because it changes how you should be thinking about your medical condition, it changes the types of natural treatment options that may be available to you, and it changes your treatment. Reds that lean more violet or pink than red are also your best bet. I know they are going to try to drop me further. Gadolinium-based Contrast Material. If below 100 I will consider a snack of some nuts or piece of fresh fruit. Certain 'hair supplements' should be avoided as they may contain iodine or interfere with levothyroxine . 4. I would recommend that you read this article for more info: https://www.restartmed.com/normal-thyroid-levels/. They do this by either stopping your oral thyroid medication or giving you thyrogen. If you are unable to get ahold of them then it may be necessary to go to the ER. What will you really expect after your RAI, side effects best army base in germany is dr abraham wagner married is dr abraham wagner married As a result, it isnt uncommon for some patients to suffer from persistent symptoms of hypothyroidism (meaning that they dont have enough thyroid hormone). I was normal weight and now frustrated to be 30 pounds overweight. I still have to work a few more years, so Im looking and applying for other jobs that arent as stressful, that are day shift Mon-Fri, with weekends, holidays and nights to myself. Thyroid Ultrasound: A thyroid gland impacted by Graves' disease is often enlarged and may have increased blood flow; both of these elements can be visualized by thyroid ultrasound. It may take some trial and error but 80% of patients should approximate normal symptoms over a few months. If you are unable to avoid direct or indirect contact with infants and young children, ask your healthcare provider about the possibility of hospitalization. Learn which foods you should avoid if you have thyroid disease of any type. Results were. If you fit into this category then you may not need to use thyroid medication afterward. I know some people contribute this the tests after 3 weeks showed my TSH to be 12.920 and now she wants to increase the meds to 175. Cats can receive a second treatment, if necessary. meat. And I cry at the drop of a hat now too. It probably wont be an issue if you left but you wouldnt want to find yourself in a situation where you are unable to get your thyroid medication and your symptoms are poorly controlled. Personally I doubt that what you describe is RAI-related because it is ongoing and (in my experience) reversible and because iodine does not have an obvious connection with hair follicles, whereas thyroid axis hormones . Restoring your metabolism will have more to do with your dose of thyroid medication than anything else. It sounds like you are being underdosed based on your TSH level. Shower once a day to rinse away the leftover radioiodine, but make sure to scrub the shower well after using it. This means avoiding public transportation, hotels, carpools, and in some cases, your . The doctor started me on .50 of Synthroid, and taking the first dose my eyes cleared the next day. 20 yrs ago. For more details, see our Privacy Policy. 2023 Dotdash Media, Inc. All rights reserved, Mary Shomon is a writer and hormonal health and thyroid advocate. U.S. Nuclear Regulatory Commission. In regards to diets that can help, please see this article: https://www.restartmed.com/hypothyroidism-diet/. MY DOCTORS ADVICE ME TO STAY UNTIL MARCH OR APRIL FOR FURTHER CHECK UP.. Its probably a good idea to stay close to your doctor until your dose of thyroid medication is optimized. Anna Thomas. To hide grays, try rhubarb root in two cups of water, simmer, strain, and pour over hair. I feel more like a ping pong ball being bounced back and forth! I HAD MY RAI LAST SEPTEMBER 12, NOW IM ALREADY 2 MONTHS AFYER MY RAI. cooked green vegetables. Now that you are considered to be hypothyroid there is a world of potential therapies, supplements, regimens, and protocols that are available to you. What are you concerned about? These symptoms are not caused by the procedure itself but rather a consequence of the damage of the thyroid gland and the inability of your body to produce thyroid hormone. I have Graves Disease and lost 40 pounds. I know this post is older but I am considering radiation! The following recommendations will give you an idea of precautions to take to avoid exposing other people (as well as pets) to iodine 131, which may be present in bodily fluids or occur as a result of close contact. In your case, these would be best: https://www.restartmed.com/product/thyroidectomy-rai-bundle/. Since then I have suffered most every day with severe chemical sensitivity. The list includes optimal ranges, normal ranges, and the complete list of tests you need to diagnose and manage thyroid disease correctly! Hi, Dr. Yash Khanna answered. You wont be able to sleep next to people, go to work, prepare food for others, go into public places, fly on an airplane, ride a bus, share utensils with others, sit on a public toilet, and so on for about 1 week (3). Can You Get Everything Your Thyroid Needs From Food? This is my story. can i color my hair after radioactive iodine. Any idea Sir ? Radioactive iodine does not produce hair loss. I hope this post is still active. Have you ever heard of this before? My eyes improved for a while but now seem to be getting worse. can i color my hair after radioactive iodinesvetlana invitational 2022 Consultation Request a Free Consultation Now. Thank you Radioactive iodine therapy is a type of internal radiotherapy treatment for thyroid cancer. Some doctor told me to move to the mountains, which I did to avoid toxic chemicals. My hair has always been my pretty part of me, the one thing that makes me feel like a pretty girl. I had RAI treatment nearly 2 years ago, and deeply regret it. The only other condition that causes heat intolerance that comes to mind is menopause and perimenopause. Therefore, it may be found in varying amounts in all food and beverages. My endocrinologist said RAI didnt work I need surgery or second RAI treatment my other hormone results was :FSH 5.3(1.5-12.4)LH:8.8(1.7-8.6) Its impossible to predict how any one person will react to any given treatment or operation but the available research suggests that those who go into the procedure overweight are more likely to gain weight afterward. If you dont have thyroid hormone at all then you risk the chance of coma and death. 2 capsules of T3 Conversion Booster daily (important if you take T4 only medication!) When you are given radioactive iodine, it is taken up by cancer cells and destroys themincluding those that have spread to the lymph nodes or other parts of the body. So far I feel strong and as I did before. Since I was at the office a week ago complaining about what PTU was doing to my body I feel nervous about calling the endocrinologist again. ", Verywell Health uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. Also learn more about our which will minimize the contamination in your home's isolation room. My weight seems to be of no concern to him as long as my blood work looks okay. is this a side effect of this proceedure. Reply. Any advice . Because of this, people may experience symptoms that may lead them to want to restore whatever thyroid function they can. Because it is entirely possible to only destroy a portion of your thyroid gland and not the entire gland. I dont want to go back to him but no one else will see me without a referral since Im still considered his patient. They wanted to give me more RAI IV for test, but I refused and I know I would have died had they done that. Over the next 5 years I gained another 10 lbs. Hi If you are a man, just be sure to consider this before you get your operation. Keep Your Distance. Many thanks in advance for any help. The amount of iodine taken up by your thyroid is then measured. Improving gut function can be done through diet and supplements. These are the questions that I want to focus on today and hopefully answer many of the current questions that you already have. Radioactive iodine works by taking advantage of the physiology in your body (1). Most of the radioiodine in your body will come out through the urine and stool. I had severe and sudden weight loss along with many other troubling symptoms. If you find that your TSH is high or that your free t3/free t4 is low, then this may be the cause of your symptoms. For most people, this means that you can expect to live at 80-90% of your 'normal'. Currently they have me on a combination of 100mcg Synthroid with 1 Grain of Armour (60mg. Not to mention the radiation! Contrast distinguishes, or "contrasts," between organs, tissues, bones, or blood vessels during your imaging exam. Looking forward to your feedback . So, if I go to bed earlier, I have to set my alarm clock to get up to take the damn pill, then have a hard time to get back to sleep, then just when I do fall into slumber, its time to get up and going for the day, and take a list of other meds, and monitor VS and glucose readings. I dont feel like I have gone back hyper after being off my meds for 4 weeks. Apply the mixture to your hair and leave it in for 20 minutes. My question is even though my thyroid is dead, should the T3 and T4 level be tested as well? He may be the one with that piece of paper that says he can prescribe and administer that damned pill, but I have a gut feeling hes too cavalier about it all. Radioactive iodine (RAI) is a treatment method for hyperthyroidism and thyroid cancer.
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